This path is often long, frustrating and lonely. You need to be prepared to become an expert in the topic, to sack doctors who are unwilling to get on board, to network with anyone who knows anything about cortisol pumping, to reach out to strangers and ask for their help, to ask a second or third time, to argue your case, to jump through bureaucratic hoops and to address many objections which will be placed in your path.
The Classic Fairy-Tale of the Magic Pills Once upon a time there was a healthy young women who liked to help others and dance. One day she noticed that she was getting tired very easily, was sleeping all of the time and her skin had turned bronze. Everyone thought that she looked very healthy. "What … Continue reading Rewriting the Fairy-Tale of Addison’s and the Magic Pill
After ten years of seeking answers for fluctuating energy levels, my twin diagnoses of Hashimoto's and Addison's Diseases arrived a couple of weeks apart. Addison's was delivered in the emergency department at around midnight on 14th June 2014 by the simple act of reading 2 numbers. For several hours, I'd been harassing any nurse who … Continue reading The Emergency Delivery of Addison Disease
If asked to take the cocktail-party challenge and explain Addison's Disease in a single entertaining sentence, I would say "my adrenal glands were damaged during a knife-fight with Mr Addison." [Insert pause for laughter]. I'd then proceed to say "yep, I'd never heard of Addison's Disease before diagnosis either. This is the disease that gave … Continue reading What is Addison’s Disease: Explanations to Entertain, Educate and Impress a Crowd