The Fairy-Tale of the Magic Pills Once upon a time there was a healthy young women who liked to help others and dance. One day she noticed that she was getting tired very easily, was sleeping all of the time and her skin had turned bronze. Everyone thought that she looked very healthy. "What a … Continue reading Backstory Part 2: The Magic Pills Dressed in Sheep’s Clothing
Last week I was involved in the Disability Pride is Back! mural in Melbourne. This was a Melbourne Fringe Festival event. Over 50 people with disabilities contributed and pasted-up artwork (drawings, prints, poetry, images) to create a huge street-mural celebrating disability pride and culture. I'm sure that my involvement in this event has left some … Continue reading Disabled is Not a Dirty Word!
I've been on the path to getting a cortisol pump for about 2.5 years...so far. Why has it taken so long? Basically I've been waiting for an endocrinologist to get on board. You see, they hold the gate keys to accessing funding (I'm talking AUD$9k for a new pump), the medical supplies to run the … Continue reading Don’t Take No for an Answer: Objections to the Cortisol Pump Debunked
As a frequent traveller to SickCity, I've compiled a list of my top 7 most useful phrases for communicating effectively with the locals (known as "medical professionals" or colloquially as "doctors" or "nurses"). To become a confident med-speaker, I recommend role-playing these phrases with a friend or in front of a mirror. 1. I refuse … Continue reading 7 Useful Phrases for Travellers to SickCity
After ten years of seeking answers for fluctuating energy levels, my twin diagnoses of Hashimoto's and Addison's Diseases arrived a couple of weeks apart. Addison's was delivered in the emergency department at around midnight on 14th June 2014 by the simple act of reading 2 numbers. For several hours, I'd been harassing any nurse who … Continue reading Backstory Part 1: The Emergency Delivery of Addison
If asked to take the cocktail-party challenge and explain Addison's Disease in a single entertaining sentence, I would say "my adrenal glands were damaged during a knife-fight with Mr Addison." [Insert pause for laughter]. I'd then proceed to say "yep, I'd never heard of Addison's Disease before diagnosis either. This is the disease that gave … Continue reading What is Addison’s Disease: Explanations to Entertain, Educate and Impress a Crowd
Becoming chronically crappy was a life-shattering event: life was splintered into a thousand little pieces that were impossible to reassemble back into the same pattern. No part of my life has been untouched by the experience and no part is now the same. Sometimes I feel as though my new life is lived in an … Continue reading Who Moved my Speedboat? Life with Chronic Crappiness
Come on in, pull up a bed and grab a cup of tea; I'm Charlie from Australia and I have some tales to tell you. I am a yogi, a sci-fi nerd, a traveller, a gamer and a thift-shopper. I have also felt chronically crappy every single day since 2014. Crappy for me is like...imagine … Continue reading Hello!