Come on in, pull up a bed and grab a cup of tea; I'm Charlie from Australia and I have some tales to tell you. I am a yogi, a sci-fi nerd, a traveller, a gamer and a thift-shopper. I have also felt chronically crappy every single day since 2014. Crappy for me is like...imagine … Continue reading Hello!
After 2 months of cortisol pumping, I give you Phillip the Pump! Thanks everyone who has supported Phillip with enthusiasm. People have been asking me how he's going. I've been answering with incoherent mumbling including the words "so much to learn", "exhausted" and "rash". But I've pulled myself together somewhat and I'm ready to show him off to the world.
My journey to get a cortisol pump in Australia has been long and challenging. The medical and healthcare systems created much grief. Let me take you through the 7 stages of grief accompanied by small animals.
If you're contemplating becoming a cortisol-pumper, one of the first things you'll be keen to know is "how much is this baby going to set me back?", closely followed by "does it come in leopard print?" Find out what you might need to pay to get up and pumping in Australia.
After 3 years of advocacy, I am finally travelling interstate tomorrow to get my cortisol pump. Yay! I thought it was timely to document why I wanted a pump. Since others have already done an excellent job of providing a scientific rationale for cortisol pumps, I've gone for a science-fiction rationale with the alternative title - "fairy godmothers vs robots". Enjoy x
As a disabled woman, I usually struggle to participate in the wonderfully boastful ritual of annual achievements, but this year I've said fuck it, I'm going to celebrate all of the ways in which I've turned my back on the goals, and kicked the football into the bonnet of the car parked on the boundary and set off it's alarm. I'm going to celebrate breaking my diet, being unreliable at work and allowing my disability to define me.
"Maybe you are doing too much", "but all of my other patients are doing well" and "if only you lost weight, you'd feel better," are classic examples of unhelp for the unwell. These unhelpful strategies caused me a storm of distress and wasted my precious time. Find out how I eventually found doctors who were helpful (hint: it involved a bin).
"Cortisol pumping is a non-evidenced based, off-label treatment that's not done here in Australia and even if it was, it would be too expensive for you and could kill you" was the wall of opposition that I faced and side-stepped before starting cortisol pumping. Equip yourself with the knowledge to overcome this wall of misinformation.
We all know the classic tale of Addison's Disease and the Magic Pill in which the young woman takes one pill a day and lives happily ever after. But have you read the alternative, Bloody Marvelous ending or the Director's Cut? In these versions, the outcomes for our herione are far more dire, driving her on a life-saving journey to find the fabled magic pump.
Last week I was involved in the Melbourne Fringe Festival event the Disability Pride is Back Mural in Footscray. Over 50 people with disabilities contributed and pasted-up artwork (drawings, prints, poetry, images) to create a huge street-mural celebrating disability pride and culture. I'm sure that my involvement in this event has left some of my … Continue reading Disabled is Not a Dirty Word!
As a frequent traveller to SickCity, I've compiled a list of my top 7 most useful phrases for communicating effectively with the locals (known as "medical professionals" or colloquially as "doctors" or "nurses"). To become a confident med-speaker, I recommend role-playing these phrases with a friend or in front of a mirror. 1. I refuse … Continue reading 7 Useful Phrases for Travellers to SickCity